AIDS AND BEREAVEMENT IN SOUTH AFRICA
DOI:
https://doi.org/10.15270/40-3-334Abstract
AIDS is the leading cause of death in South Africa and attention needs to be focused on the needs of countless individuals who grieve AIDS-related deaths. Social workers must be prepared to assist those who grieve AIDS-related losses, especially children, women, and the elderly. AIDS-related bereavement must be understood in terms of the complex social, political, and economic factors inherent in South African society. Strategies are suggested for addressing AIDS-related bereavement in the local context.Downloads
References
ABDOOL-KARIM, Q 2000. Trends in HIV/AIDS infection: Beyond current statistics. South African Journal of International Affairs, 7:1-21.
ABT ASSOCIATES INC. SOUTH AFRICA 2000. The impending catastrophe: A resource book on the emerging HIV/AIDS epidemic in South Africa. Report published by Lovelife Programme, Johannesburg.
ADES, A; RATCLIFFE, J; GIBB, D; AND SCULPHER, M 2000. Economic issues in the prevention of vertical transmission of HIV. Pharmacoeconomics, 18(1):9-22.
ASHFORTH, A 2002. An epidemic of witchcraft? The implications of AIDS for the post-apartheid state. African Studies, 61(1):121-143.
ASSOCIATED PRESS 5 August 2003. “South Africa in ‘death’ phase of AIDS epidemic”.
BARROSO, J 1997. Social support and long-term survivors of AIDS. Western Journal of Nursing Research, 19(5):554-582.
BERNSTEIN, AJ AND VAN ROOYEN, CAJ 1994. Sociocultural factors and their importance in working with people with AIDS in South Africa. Social Work/Maatskaplike Werk, 30(4):375-381.
BIGELOW, G AND HOLLINGER, J 1996: Grief and AIDS: Surviving catastrophic multiple loss. The Hospice Journal, 11(4):83-96.
http://socialwork.journals.ac.za/
Social Work/Maatskaplike Werk 2004:40(3)
BLOM, S AND BREMRIDGE, C 2003. Running support groups for people with HIV/AIDS. In Uys, L and Cameron, S (eds), Home-based HIV/AIDS care. Cape Town, SA: Oxford University Press: 81-92.
BOOYSEN, F; VAN RENSBURG, D; BACHMANN, M; ENGELBRECHT, M AND STEYN, F 2002. The socioeconomic impact of HIV/AIDS on households in South Africa. AIDS Bulletin, 11(1):1-5.
BROUWER, CNM; LOK, CL; WOLFFERS, I AND SEBAGALLIS, S 2000. Psychosocial and economic aspects of HIV/AIDS and counseling of caretakers of HIV-infected children in Uganda. AIDS Care, 12(5): 535-540.
CAMPBELL, C 2003. ‘Letting them die’: Why HIV/AIDS prevention programmes fail. Indiana: Indiana University Press.
CATALAN, J 1995. Psychiatric problems associated with grief. In Sherr, L (ed), Grief and AIDS. Chichester, England: John Wiley and Sons, Ltd: 59-71.
CENTERS FOR DISEASE CONTROL AND PREVENTION, 2003. HIV/AIDS Update. Available from: http://www.cdc.org
CHAMBRE, S. M. 1999. Redundancy, third-part government, and consumer choice: HIV/AIDS nonprofit organizations in New York City. Policy Studies Journal, 27: 840- 850.
COLVIN, M; DAWOOD, S; KLEINSCHMIDT, I; MULLICK, S AND LALLO, U 2001. Prevalence of HIV and HIV-related diseases in the adult medical wards of a tertiary hospital in Durban, South Africa. International Journal of STD & AIDS, 12: 386-389.
COOK, AS AND DWORKIN, DS 1992. Helping the Bereaved. US: Basic Books.
DANE, BO AND MILLER, SO 1992. AIDS: intervening with hidden grievers. Westport, Connecticut: Auburn House.
DEEKS, SG; SMITH, M; HOLODNIY, M & KAHN, JO 1997. HIV-1 protease inhibitors: A review for clinicians. The Journal of the American Medical Association, 277(2):145-153.
DELIUS, P AND WALKER, L 2002. AIDS in context. African Studies, 61(1): 5-12.
DEMMER, C 1999a. Coping of staff in AIDS nursing facilities. AIDS Patient Care and STDs, 13(10):609-614.
DEMMER, C 1999b. AIDS attitudes and attitudes toward caring for dying patients among AIDS nursing staff. Death Studies, 23(5): 433-442.
DEMMER, C. 2001. Dealing with AIDS-Related Loss and Grief in a Time of
Treatment Advances. American Journal of Hospice & Palliative Care, 18 (1): 35-41.
DEMMER, C 2002a. Loss and grief following the death of a patient with AIDS. Home Care Consultant: Home Care Medicine, July: 19-23.
DEMMER, C 2002b. Stressors and rewards for workers in AIDS service organizations. AIDS Patient Care and STDs, 16(4):179-87.
DEMMER, C 2003. The twilight zone: AIDS in South Africa. The Forum, 29(4):1,3.
DOKA, KJ 1989. Disenfranchised grief: Recognizing hidden sorrow. Lexington, MA: Lexington Books.
DORRINGTON, R; BOURNE, D; BRADSHAW, D; LAUBSCHER, R AND TIMAEUS, I 2001. The impact of HIV/AIDS in adult mortality in South Africa, Technical Report. Burden of Disease Research Unit. Cape Town: Medical Research Council.
ECONOMIST, THE 2003. Death by dithering. August 9, 368 (8336): p. 67.
EVIAN, C 2003. An anonymous, unlinked HIV prevalence among a large workforce of agricultural/manufacturing employees in the Eastern (Lubombo) Swaziland region and comparison with the available local ante-natal HIV prevalence data. Paper presented to the ‘Demography and Socio-Economic’ conference, Durban. Available on www.und.ac.za/und/heard/papers/conf
FASSIN, D 2003. The embodiment of inequality: AIDS as a social condition and the historical experience in South Africa. EMBO Reports, 4 June: S4-S9.
FOSTER, G. Supporting community efforts to assist orphans in Africa. The New England Journal of Medicine, 346(24): 1907-1910.
GILBERT, L AND WALKER, L 2002a. HIV/AIDS in South Africa: An overview. Cad.Saude Publica, Rio de Janiero, 18(3): 651-660.
GILBERT, L AND WALKER, L 2002b. Treading the path of least resistance: HIV/AIDS and social inequalities - a South African case study. Social Science and Medicine, 54: 1093-1110.
GOODKIN, K; BLANEY, NT; TUTTLE, RS; NELSON, RH; BALDEWICZ, T; KUMAR, M; FLETCHER, MA; LEEDS, B AND FEASTER, DJ 1996. Bereavement and HIV infection. International Review of Psychiatry, 8(2/3):201-216.
GOODKIN, K; BLANEY, NT; FEASTER, DJ; BALDEWICZ, T; BURKHALTER, JE AND LEEDS, B 1999. A randomized controlled clinical trail of a bereavement support group intervention in human immunodeficiency virus type 1-seropositive and –seronegative homosexual men. Archives of General Psychiatry, 56: 52-59.
GRAY, M AND MAZIBUKO, F 2002. Social work in South Africa at the dawn of the new millennium. International Journal of Social Welfare, 11: 191-200.
HENDERSON, CW 2000. AIDS overwhelms South African hospitals. AIDS Weekly, January 17, 2000, p 20-21.
HENLEY, LD 2002. End of life care in HIV-infected children who died in hospital. Developing World Bioethics, 2(1):38-54.
HOUSEMAN, C AND PHEIFER, WG 1998. Potential for unresolved grief in survivors of persons with AIDS. Archives of Psychiatric Nursing, 29(5):296-301.
JEWITT, L 2001. Building resilience and hope for the future. CYC-Online: Reading for Child and Youth Care Workers, 34 November: 1-4. Available from: http://www.cyc-net.org/cyc-online/cycol-1101-jewitt.html
JOHNSON, L AND BUDLENDER, D 2002. HIV risk factors: A review of the demographic, socio-economic, biomedical and behavioural determinants of HIV prevalence in South Africa. CARE Monograph No. 8. Cape Town: Centre for Actuarial Research, University of Cape Town.
JOSLIN, D AND HARRISON, R 2002. Self-reported physical health among older surrogate parents to children orphaned and affected by HIV disease. AIDS Care, 14(5): 619-624.
KARON, JM; FLEMING, PL; STEKETEE, RW & DE COCK, KM 2001. HIV in the United states at the turn of the century: An epidemic in transition. American Journal of Public Health, 91(7):1060-1068.
KASIRAM, MI. AND PARTAB, R 2002. Grieving through culture and community: A South African perspective. Social Work/Maatskaplike Werk, 38(1):39-44.
KELLY, B.; RAPHAEL, B.; STATHAM, D. 1996. A comparison of the psychosocial aspects of AIDS and cancer-related bereavement. International Journal of Psychiatry in Medicine, 26(1):35-49.
KEMENY, M.E.; WEINER, H.; DURAN, R.; TAYLOR, S.E.; VISSCHER, B. & FAHEY, J L 1995. Immune system changes after the death of a partner in HIV-positive gay men. Psychosomatic Medicine, 57(6): 547-554.
KILLEEN, M.K. 1993. Getting through our grief. American Journal of Hospice & Palliative Care, 10(5):18-24.
LANCET, THE 1999. Widespread horror over killing of AIDS activist in South Africa. January 9, 353 (9147): p. 130.
LANDMAN, C 2002. The AIDS orphans of South Africa. Contemporary Review, 281(1642): 268-270.
LINDEGGER, G AND WOOD, G 1995. The AIDS crisis: Review of psychological issues and implications, with special reference to the South African situation. South African Journal of Psychology, 25(1):1-11.
LINDEMANN, E 1944. The symptomatology and management of acute grief. American Journal of Psychiatry, 101:141-148.
LOENING-VOYSEY, H 2002. HIV/AIDS in South Africa: Caring for vulnerable children. African Journal of AIDS Research, 1(2): 103-110.
MAASEN, T 1998. Counselling gay men with multiple loss and survival problems: The bereavement group as a transitional object. AIDS Care, 10(1):S57-S63.
MAIL & GUARDIAN, 2004a. AIDS allocation grows, but health spending is down. February 20, 20 (8): p. 22.
MAIL & GUARDIAN, 2004b. Roll-out or cop-out? February 20, 20 (9): p. 2.
MALLINSON, RK 1999. Grief work of HIV-positive persons and their survivors. Nursing Clinics of North America, 34(1):163-177.
MARTIN, L AND ALEXANDER, P 2002. Getting up to speed: South Africa’s tertiary institutions and HIV/AIDS. Society in Transition, 33(3): 330-346.
MAYNE, TJ; ACREE, M; CHESNEY, MA AND FOLKMAN, S 1998. HIV sexual risk behavior following bereavement in gay men. Health Psychology, 17(5): 403-411.
MITTON, J 2000. The sociological spread of HIV/AIDS in South Africa. Journal of the Association of Nurses in AIDS Care, 11(4):17-26.
MOLLER, V 1997. AIDS: The ‘grandmothers disease’ in Southern Africa. Ageing and Society, 17: 461-466.
MONAHAN, JR 1994. Developing and facilitating AIDS bereavement support groups. Group, 18(3): 177-185.
NATTRASS, N 2004. The moral economy of AIDS in South Africa. Cambridge, UK: Cambridge University Press.
NIEMEYER, RA 1998: Lessons of loss: A guide to coping. New York: The McGraw-Hill Companies.
NORD, D 1997. Multiple AIDS-related loss: A handbook for understanding and surviving a perpetual fall. Washington, DC: Taylor & Francis.
NZIOKA, C 2000. The social meanings of death from HIV/AIDS: An African interpretative view. Culture, Health & Sexuality, 2(1):1-14.
PELTZER, K AND PROMTUSSANANON, S 2003. HIV/AIDS education in South Africa: teacher knowledge about HIV/AIDS: Teacher attitude about and control of HIV/AIDS education. Social Behavior and Personality, 31(4):349-356.
PHILLIPS, H 2003. AIDS in South Africa: An historical perspective. Society, 40(4): 72-76.
POKU, NK 2001. Africa’s AIDS crisis in context: ‘How the poor are dying’. Third World Quarterly, 22(2):191-204.
PORCHE, DJ 1999. State of the art: Antiretroviral and prophylactic treatments in HIV/AIDS. Nursing Clinics of North America, 34(1):95-112.
REDDY, P; TAYLOR, SE AND SIFUNDA, S 2002. Research capacity building and collaboration between South African and American partners: The adaptation of an intervention model for HIV/AIDS prevention in corrections research. AIDS Education and Prevention, 14(Supplement B): 92-102.
REHLE, TM AND SHISANA, O 2003. Epidemiological and demographic HIV/AIDS projections: South Africa. African Journal of AIDS Research, 2(1):1-8.
ROBINSON, LA 2001. Adult grief reactions following a sibling’s death from AIDS. Journal of the Association of Nurses in AIDS Care, 12(2):25-32.
ROFES, E 1998. Dry bones breathe: Gay men creating post-AIDS identities and cultures. New York: The Harrington Park Press.
SALONER, KL 2002. Rising to the challenge: The critical role of social workers in the face of the HIV/AIDS pandemic. Social Work/Maatskaplike Werk, 38(2):154-160.
SCHNEIDER, H AND FASSIN, D 2002. Denial and defiance: A socio-political analysis of AIDS in South Africa. AIDS, 16 (Supplement 4): S45-S51.
SCHWARTZBERG, SS 1992. AIDS-related bereavement among gay men: The inadequacy of current theories of grief. Psychotherapy, 29(3):422-429.
SEWPAUL, V 2001. Models of intervention for children in difficult circumstances in South Africa. Child Welfare, 80(5):571-587.
SHERR, L 1995. The experience of grief-psychological aspects of grief in AIDS and HIV infection. In Sherr, L (ed), Grief and AIDS. Chichester, England: John Wiley and Sons, Ltd:1-27.
SHISANA, O AND SIMBAYI L 2002. South African national HIV prevalence, behavioural risks and mass media. Nelson Mandela/HSRC Study of HIV/AIDS. Pretoria: HSRC.
SIKKEMA, KJ; KALICHMAN, SC; KELLY, JA AND KOOB, JJ 1995. Group intervention to improve coping with AIDS-related bereavement: Model development and an illustrative clinical example. AIDS Care, 7(4):463-475.
SOUTH AFRICAN DEPARTMENT OF HEALTH (SA DEPT OF HEALTH) 2001. National HIV and syphilis seroprevalence survey of women attending public antenatal clinics in South Africa. Pretoria: South African Department of Health.
SOUTH AFRICAN HEALTH REVIEW 1999. Durban: Health Systems Trust.
STRODE, A AND GRANT, K 2001. The role of stigma and discrimination in increasing the vulnerability of children and youth infected with and affected by HIV/AIDS. Research Report commissioned by Save the Children (UK). Pretoria: Save the Children.
STRYDOM, H 2002. Social work research on the feelings and perceptions of AIDS patients in a South African clinic. Social Work/Maatskaplike Werk, 38(2):131-153.
SUMMERS, J; ZISOOK, S; ATKINSON, JH; SCIOLLA, A; WHITEHALL, W; BROWN, S; PATTERSON, T AND GRANT, I 1995. Psychiatric morbidity associated with acquired immune deficiency syndrome-related grief resolution. The Journal of Nervous and Mental Disease, 183(6):384-389.
UNAIDS 2000. Report on the HIV/AIDS Pandemic. Available: http://www.unaids.org/pandemicupdate/report/html.index.
UNAIDS 2002. Epidemiological fact sheets on HIV/AIDS and sexually transmitted infections. 2002 Update. Available from: http://www.unaids.org
UNISA (University of South Africa) 2000. Report of the Bureau of Market Research, July 2000. Pretoria: University of South Africa Press.
VAN NIEKERK, A.A.. 2001. Moral and social complexities of AIDS in Africa. Journal of Medicine and Philosophy, 27(2):143-162.
VAN ROOYEN, C.A.J. & BERNSTEIN, A. 1992. AIDS education for student social workers in South Africa: Are social workers being educated to meet the needs of the society in which they function? Social Work/Maatskaplike Werk, 28(4):48-59.
VAN ROOYEN, CAJ AND SEWPAUL, V 1993. Guidelines for AIDS-related social work education in South Africa. Social Work/Maatskaplike Werk, 29(3):223-232.
WALKER RJ; POMEROY, EC; MCNEIL, JS AND FRANKLIN, C 1996. Anticipatory grief and AIDS: Strategies for intervening with caregivers. Health and Social Work, 21(1):49-57.
WALKER L; REID, G AND CORNELL, M 2004. Waiting to happen: HIV/AIDS in South Africa. Cape Town, SA: Double Storey.
WASHINGTON POST, THE 2000. Pseudoscience in South Africa. April 18: A 28.
WIENER, LS 1998. Telephone support groups for HIV-positive mothers whose children have died of AIDS. Social Work, 43(3): 279-285.
WILLIAMS, A AND TUMWEKWASE, G 2001. Multiple impacts of the HIV/AIDS epidemic on the aged in rural Uganda. Journal of Cross-Cultural Gerontology, 16: 221-236.
WINTER, A; JACOBS, L; DELATE, R AND O’MALLEY, K 1998. UNAIDS executive director warns of unprecedented emergency in South Africa [Online]. Available: http://unaids.org/unaids/press/sadec98e.html
WORDEN, JW 1991. Grief counseling and grief therapy. New York: Springer Publishing Company.
YOUNG, L and ANSELL, N 2003. Young AIDS migrants in Southern Africa: Policy implications for empowering children. AIDS Care, 15(3): 337-345.
ZWI, KJ; PETTIFOR, JM and SODERLUND, N 1999. Paediatric hospital admissions at a South African urban regional hospital: The impact of HIV, 1992-1997. Annals of Tropical Paediatrics, 19:135-142.
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