THE ROLE OF HOSPICE CAREGIVERS IN CARING FOR FAMILIES INFECTED WITH, OR AFFECTED BY, HIV/AIDS

Authors

  • Nerina Bester Child Welfare South Africa (Kokstad).
  • Alida Herbst Social Work Division, School for Psycho-social Behavioral Sciences, North-West University, Potchefstroom Campus, South Africa.

DOI:

https://doi.org/10.15270/46-4-152

Abstract

Hospice TLC is the name of a non-profit organization (NPO) rendering services in the Kokstad
area situated in the southern region of KwaZulu-Natal, South Africa. Hospice TLC has been in
operation since June 2006 and its main focus is to render holistic palliative and frail care to all
patients in their area of operation. In this article the focus will be on the role Hospice TLC
caregivers can play in meeting the bio-psychosocial needs of families infected or affected by
HIV and AIDS in the Kokstad area. Through their contact with frail and terminally ill patients
the caregivers have access to their families, affording them an opportunity to identify and meet
some of the bio-psychosocial needs of the families.

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References

AVERT, 2005. South Africa HIV/AIDS Statistics. [Online] Available: http:www.avert.

org/safricastats.htm [Accessed: 15/07/2008].

BOOYSEN, F. 2004. Social grants as safety net for HIV/AIDS affected households in South

Africa. Journal of Social Aspects of HIV/AIDS research Alliance, 1(1):45-54.

BUCKINGHAM, R.W. & MEISTER, E.A. 2001. Hospice care for the child with AIDS. The

Social Science Journal, 38:461-467.

CALMAN, K.C. 1984. Quality of life in cancer patients – a hypothesis. Journal of Medical

Ethics, (10):124-127.

CORR, C.A., NABE, C.M. & CORR, D.M. 1999. Death and dying, life and living. United

States: Thomson Wadsworth.

COSTA, B.M., HALL, L. & STEWART, J. 2007. Qualitative exploration of the nature of griefrelated

beliefs and expectations. Omega, 55(1):25-35.

DANIELSON, R.N., HAMEL-BISSELL, B. & WINSTEAD-FRY, R.N. 1993. Families,

health & illness: perspectives on coping and intervention. St. Louis: Mosby.

DELPORT, J., ROUX, A. & RANKIN, P. 2008. Die rol van maatskaplike werk in verwante

pleegsorgplasings. Social Work/Maatskaplike Werk, 44(3):307-322.

DEPARTMENT OF SOCIAL DEVELOPMENT. 2003. National guide-lines for social

services to children infected and affected by HIV/AIDS. Save the Children, South African

Programme.

DE VITO, J.A. 2001. The interpersonal communication book. New York: Longman.

EGAN, G. 1994. The skilled helper. Pacific Grove: Brookes/Cole.

EMANUEL, L.L., VON GUNTEN, C.F. & FERRIS, F.D. 1999. EPEC – Education for

Physicians on End-of-life Care: Participant’s Handbook Plenary 3. Elements and models

of end of life care. EPEC Project. The Robert Wood Foundation. USA. 1-15.

FOUCHÉ, C.B. & DELPORT, C.S.L. 2007. Introduction to the research process. In: DE VOS,

A.S., STRYDOM, H., FOUCHÉ, C.B. & DELPORT, C.S.L. (eds) Research at grass roots:

for the social sciences and human service professions. Pretoria: Van Schaik Publishers: 71-

FOUCHÉ, C.B. & DE VOS, A.S. 2007. Problem formulation. In: DE VOS, A.S., STRYDOM,

H., FOUCHÉ, C.B. & DELPORT, C.S.L. (eds) Research at grass roots: for the social

sciences and human service professions. Pretoria: Van Schaik Publishers: 100-110.

GERMAN, S.E. 2005. I am a hero – orphans in child-headed households and resilience.

Pretoria: UNISA. (DLitt et Phil in development studies)

GREEFF, M. 2007. Information collection: interviewing. In: DE VOS, A.S., STRYDOM, H.,

FOUCHÉ, C.B. & DELPORT, C.S.L. (eds) Research at grass roots: for the social sciences

and human service professions. Pretoria: Van Schaik Publishers: 286-313.

GROENEWALD, M. 2005. Nursing and health-care issues from the beginning of life in

adolescence. In: PERA, S.A. & VAN TONDER, S. (eds) Ethnics in health care.

Landsdowne: Juta: 111-137.

HALKETT, R. 2005. National programme: HIV/AIDS and the care of children.

Johannesburg: Child Welfare South Africa.

HOSPICE TLC 2006. Constitution, Kokstad: Unpublished policy document.

IVERSON, K.M. 2007. Understanding trauma. In: FOLLETTE, V.M. & PISTORELLA, J.

(eds) Finding life beyond trauma. Oakland: New Harbinger: 9-25.

JERANT, A.F., RABMAN, S.A., NESBITT, T.S. & MEYERS, F.J. 2004. The TLC model of

palliative care in the elderly: Preliminary application in the assisted living setting. Annals of

Family Medicine, 2(1):54-60.

JOHNSON, D.W. 2000. Reaching out. Boston: Allyn and Bacon.

KAGEE, A. 2008. Theoretical concerns in applying the diagnosis of PTSD to HIV and AIDS.

Social Work/Maatskaplike Werk, 44(3):247-250.

MBOYI, L., CARRARA, H., MAKAYE, G., FROHLICH, J. & KARIM, Q.A. 2005.

Understanding HIV and AIDS stigma and discrimination at a community level:

perspectives from rural KwaZulu-Natal. Fitzroy Victoria, Australia: Oxfam.

MOUTON, J. 2005. How to succeed in your master’s and doctoral studies. Pretoria: Van

Schaik Publishers.

OSD (Oxford Student Dictionary). 2001. Collaborator. Oxford: Clarendon Press.

PERA, S.A. & VAN TONDER, S., 2005. Ethics in health care. Landsdowne: Juta.

PRETORIA SUNGARDEN’S HOSPICE. 2006. Module 2. Pretoria: HPCA.

SLABBERT, S. 2003. Caring: a nurse’s perspective. Health Annals, 12:23-26.

SMART, R. 2003. Children affected by HIV/AIDS in South Africa: a rapid appraisal of

priorities, policies and practices. Arcadia: Save the children (UK).

SMIT, E. 2007. The impact of HIV/AIDS on rural South African families. Child Abuse

Research in South Africa, 8(1):1-10.

SOUTH COAST HOSPICE. 2003. Scope of practice. Unpublished policy document.

STATSSA. 2008. Census 2001 – Municipality of Kokstad. [Online] Available: http:www.

statssa.gov.za/extract.htm [Accessed: 21/07/2008].

STRYDOM, H. 2000. Maatskaplike navorsing diktaat vir MWKG 321-411. Potchefstroom:

Potchefstroom Universiteit vir Christelike Hoër Onderwys.

STRYDOM, H. & HERBST, A. 2008. The Psychosocial implications of the closing of a mine

for workers and their families. Social Work/Maatskaplike Werk, 44(2):170-188.

TESCH, R. 1990. Qualitative research: analysis types & software tools. Basingstoke: The

Falmer Press.

VAN WYK, N. & LEMMER, E. 2007. Redefining home-school-community partnerships in

South Africa in the context of the HIV/AIDS pandemic. South African Journal of Education,

(2):240-250.

VILLARREAL, M. 2002. HIV/AIDS: a rural issue. [Online] Available: http:www.fao.

org/FOCUS/E/aids/aids 1-e.htm [Accessed: 21/07/2008].

WOOD, K., CHASE, E. & AGGLETON, P. 2006. Telling the truth is the best thing: Teenage

orphan’s experiences of parental AIDS-related illness and bereavement in Zimbabwe. Social

Science & Medicine, 63:1923-1933.

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Published

2014-06-13

How to Cite

Bester, N., & Herbst, A. (2014). THE ROLE OF HOSPICE CAREGIVERS IN CARING FOR FAMILIES INFECTED WITH, OR AFFECTED BY, HIV/AIDS. Social Work/Maatskaplike Werk, 46(4). https://doi.org/10.15270/46-4-152

Issue

Vol. 46 No. 4 (2010)

Section

Articles

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