PSYCHO-SOCIAL EXPERIENCES OF PERINATALLY HIV-INFECTED ADOLESCENTS RESIDING IN CHILD AND YOUTH CARE CENTRES IN SOUTH AFRICA
AbstractThe psycho-social impact of HIV on perinatally infected children has been overlooked by policy makers internationally and nationally. This study explored the psycho-social experiences of perinatally HIV-infected adolescents who were residing in child and youth care centres in Gauteng in South Africa. The article adopts a social constructionist lens to discuss their biographical profile as well as four themes: knowledge and feelings towards mother; dealing with secrecy and disclosure; the way social networks affect treatment adherence; and interactions with health and social services. The paper concludes with some suggestions for health and social service professionals to help these adolescents navigate through this phase of their lives.
ALVESSON, M. & SKöLDBERG, K. 2009. Reflexive methodology: new vistas for qualitative research. Thousand Oaks, CA: Sage Publications.
BABBIE, E. & MOUTON, J. 2001. The practice of social research (South African ed). Cape Town: Oxford University Press.
BERK, L.E. 2000. Child development (5th ed). Massachusetts: Allyn & Bacon.
BROWNE, K. 2009. The risk of harm to young children in institutional care. Save The Children, UK.
CHILDREN’S ACT 38 of 2005. Government Gazette, Pretoria, South Africa.
CLOSE, K.L. 2006. Psychosocial aspects of HIV/AIDS: children and adolescents. In: HIV Curriculum for the Health Professionals. Baylor College of Medicine, USA.
DOMEK, G.J. 2012. Psychosocial needs of HIV-positive children on antiretroviral: a survey of South African Children’s homes. Vulnerable Children and Youth Studies, 1:1-12.
EDGREN, R.A. 2006. Perinatal Infection. [Online] Available: http//www. Health/Encylopaedia of Medicine 2001. [Accessed: 01/10/2014].
FOSTER, C. & FIDLER, S. 2011. Adolescents with Perinatally Acquired HIV-1 Infection. European Infectious Diseases, 5(1):10-16.
HODGSON, I., ROSS, J. & HAAMUJOMPA, C. 2012. Living as an adolescent with HIV in Zambia: lived experiences, sexual health and reproductive needs. AIDS Care, 24:1204-1210.
HOWE, M. 2002. Psychosocial social work. In: ADAMS, R., DOMINELLI, L. & PAYNE, M. 2002. Social work: themes, issues, critical debates. New York: Palgrave Macmillan.
KARINA SANTAMARIA, E., DOLEZAL, C., MARHEFKA, S.L., HOFFMAN, S., AHMED, Y., ELKINGTON, K & MELLINS, C.A. 2011. Psychosocial implications of HIV Serostatus disclosure to youth with perinatally acquired HIV. AIDS Patient Care and STDs, 25(4):257-267.
KUMAR, S., MMARI, K. & BARNES, W. 2009. Programming considerations for youth friendly HIV services. Establishing a framework for success. [Online] Available: http://ftquonline.org [Accessed: 02/02/2012].
MARLOW, C. 2012. Research methods for generalist social work (5th ed). Brooks/ Cole: Cengage Learning.
MATIDA, L.H., MARCOPITO, L.F., MENEZES SUCCI, R.C., SOUZA MARQUES, H.H., NEGRA, M.D., GRANGEIRO, A. & HEARST, N. 2005. Improving survival among Brazilian children with perinatally acquired AIDS. The Brazilian Infectious Journal Diseases, 8(6):419-423.
MELLINS, C.A 2011. Psychosocial implications of HIV Serostatus Disclosure to Youth with Perinatally Acquired HIV/AIDS Patient Care and STDs. AIDS Patient Care and STDs, 25(7):413-422.
MELLINS, C.A., BRACKIS-COTT, C., DOLEZAL, C. & ABRAMS, E.J. 2004. The role of psychosocial and family factors in adherence to antiretroviral treatment in Human Immunodeficiency Virus-Infected Children. The Pediatric Infectious Disease Journal, 23:1035-1041.
MOHANGI, K. 2009. Finding roses amongst thorns: how institutionalised children negotiate pathways to well-being while affected by HIV and AIDS. Pretoria: University of Pretoria. (Unpublished PhD Thesis)
MOSES, M. & MEINTJIES, H. 2010. Positive care: HIV and residential care for children in South Africa. African Journal of AIDS Research, 9(2):107-115.
PERUMAL, N. & KASIRAM, M. 2008. Children’s home and foster care: challenging dominant discourses in South African Social Work Practice. Social Work/Maatskaplike Werk, 44(2):159-169.
PILLAY, A. 2009. An Evaluation of the bereavement program at Durban Children’s home. Durban: University of KwaZulu-Natal. (Unpublished MA Thesis)
RANIGA, T. 2007. A critique of the South African National life-skills and HIV/AIDS school policy: lessons for policy adjustment. Social Work/Maatskaplike Werk, 43(1):66-76.
SARANTAKOS, M. 2005. Social research (3rd ed). China: Palgrave Macmillan.
UNAIDS. 2011. Global Report on Global AIDS Epidemic. [Online] Available: http:www.unaids.org/globalreport/Global report.htm. [Accessed: July 2012].
VUJOVIC, M., MEYERSFELD, S. & STRUTHERS, H. 2011. Support for HIV positive adolescents. [Online] Available: http://www.anovahealth.co.za. [Accessed: 27/05/2011].
WIENER, L.S., MELLINS, C.A., MARHEFKA, S. & BATTLES, H.B. 2007. A longitudinal study of adolescents with perinatally or transfusion acquired HIV infection: sexual knowledge, risk reduction self-efficacy and sexual behaviour. AIDS Behaviour, 11:471-478.
WILLIAMSON, J. & GREENBERG, A. 2010. Families, not orphanages, better care working paper. Better Care Network.
WORLD HEALTH ORGANISATION. 2011. Global HIV and AIDS Progress Report. Geneva: WHO Press.
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